National Hospice and Palliative Care Organization, in partnership with Dream Foundation, releases new “Moments of Life” video featuring 21 year-old Lyle Romans
(Alexandria, Va.) — The National Hospice and Palliative Care Organization released a new video today as part of the “Moments of Life: Made Possible by Hospice” public awareness campaign. The video features Lyle Romans, a 21 year-old with terminal lung disease and dermatomyositis. “Lyle’s Hawaiian Dream” shows Lyle and his foster family on a journey from his home in Oregon to the beautiful beaches of Waikiki, Hawaii. His trip was made possible by Dream Foundation, the only national dream-granting organization for terminally-ill adults.
Lyle, who has lived with the Dobbs family since he was 18 years-old, was an active teenager. In his senior year, he was diagnosed with lung disease and since then his health has continued to decline. He has lost 80% of his lungs due to scarring and cysts. He no longer has the ability to walk or move his neck and he is losing his sight. Lyle’s dream was to go to Hawaii to see and experience the natural beauty of the islands before his sight was completely gone.
Dream Foundation stepped in to make Lyle’s Dream of a Hawaiian vacation a reality. Lyle and his family visited the island of Oahu in June.
“Lyle is an inspiration,” says Dream Foundation’s Chief Executive Officer, Kisa Heyer. “A terminal diagnosis at any age is heart-wrenching but at twenty-one, Lyle took it upon himself to motivate others. We are honored to have brought his final dream to life.”
Over the past two decades, Dream Foundation’s dreams have provided psychosocial and emotional support tailored to thousands of terminally-ill adults and their families. They are passionate about bringing life to final dreams and helping to make the most of their dreamer’s final days.
In the video, Lyle can be seen enjoying the sights of Oahu including the famous Halona Blowhole and Sea Life Park Hawaii. Palliative care helped stabilize Lyle enough to be at home with his family and strong enough to enjoy this trip.
“Palliative care is different from hospice in that it allows patients to continue to receive aggressive and curative kinds of treatments while receiving palliative care, and they do not need a physician to certify that they have a life-expectancy of six months or less,” said NHPCO President and Chief Executive Officer J. Donald Schumacher. “Much of the palliative care provided in the United States is provided by hospice programs.”
Lyle’s video is part of the “Moments of Life” public awareness campaign launched by the National Hospice and Palliative Care Organization in 2014. The campaign features stories from hospices and palliative care programs across the United States of patients and families experiencing hospice and palliative care first hand. The “Moments of Life” website has information available on palliative care.